(Matt Ferner of Huffington Post) – A video released Wednesday tells a powerful and all-too-common story. A child who suffers from severe seizures can’t find relief using traditional medicine. Her family wants to try medical marijuana, a substance that has been proven to treat children with similar disorders. But her state bans them from obtaining it.
The video, produced by Learn Liberty at the Institute for Humane Studies at George Mason University and sponsored by Drug Policy Alliance, tells the story of a 7-year-old girl from Ohio named Sophia Nazzarine who was diagnosed as an infant with “uncontrolled” epilepsy — a form of of the disease that is so severe that anti-seizure medications on the market can’t effectively treat the condition.
Before Sophia was one-year-old, she suffered up to 20 seizures a day, and as her parents explain in the video, they have tried every available traditional medical option to help their daughter. For most of her life, Sophia has routinely taken multiple pharmaceutical medications, but the drugs fail to stop her seizures. By the time she was 6 years old, Sophia already had two brain surgeries to remove portions of her frontal lobe to help reduce the severity of her form of epilepsy. But a month after her final surgery, the seizures returned.
Desperate for help, Sophia’s parents want to try medical marijuana. They hope that their daughter might find similar results that the Figi family found for their daughter Charlotte, a Colorado girl with a rare form of epilepsy who has seen her debilitating seizures dramatically reduced Charlotte’s Web, a now-famous strain of medical cannabis named in her honor.
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